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National Organization for Rare Disorders Patient Assistance Programs | National Organization for Rare Disorders

Eligibility
Call or email for information
Required documents
Varies by service
(800) 999-6673
Voice·

Toll-Free

(844) 259-7178
Voice·

Alternate Number

(800) 469-0283
Voice·

Main Phone

Application process
Visit website or call for information
Fees
None
Service area
United States

Aims to improve the health and well-being of people with rare diseases by driving advances in care, research, and policy.

Patient Assistance Program: Provides patient assistance programs to help individuals living with rare diseases. NORD’s website provides a listing of all of their Patient Assistance Programs, and it is kept current.

NORD’s Information and Resource Services team is always available to help by phone or email.

Date of Last Formal Update
06/02/2025
Data provided by
United Way of the Midlands
Providing organization
National Organization for Rare Disorders
Information and assistance for patients and their families experiencing more than 1,200 rare diseases.