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Medical Care Expense Assistance | National Organization for Rare Disorders

7 Kenosia Avenue, Danbury, CT 06810

Eligibility
US citizen or permanent resident of the United States for at least 6 months with evidence of residency; Must meet income/financial guidelines; Provide care for an individual with a confirmed rare disease diagnosis.
Required documents
Photo ID Proof of residence Proof of income Additional documentation may be required.
Hours
Monday to Thursday, 9:30 am - 6:00 pm Friday, 9:30 am - 5:00 pm
844-259-7178
Voice·

Spanish

800-999-6673
Voice·

Toll Free

203-263-9938
Fax·

Fax

203-616-4328
Voice·

Caregiver Respite Program

203-744-0100
Voice·

Main

Languages
English, Spanish; Interpreters for additional languages can be provided.
Application process
(1) Call 800-999-6673 or email [email protected] for additional information. (2) Call 844-259-7178 for help in Spanish.
Fees
No Fees
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.
Date of Last Formal Update
03/25/2025
Data provided by
211 DuPage County
Providing organization
National Organization for Rare Disorders
Supports individuals suffering from or affected by diagnosed rare diseases and their families. Provides information on rare diseases and a patient financial assistance program for specified diseases and medications.