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Aims to improve the health and well-being of people with rare diseases by driving advances in care, research, and policy.
Patient Assistance Program: Provides patient assistance programs to help individuals living with rare diseases. NORD’s website provides a listing of all of their Patient Assistance Programs, and it is kept current.
NORD’s Information and Resource Services team is always available to help by phone or email.
Offers help with water bills and prescription drugs, up to $50. May be used twice in a 12 month period.
Offers a Drug Donation Repository that accepts donated medicines that are unexpired, in tamper-evident packaging, non-controlled, and do not require refrigeration. With these donations, SafeNetRx is able to provide discounted medicines to those that are underinsured, uninsured, or below 200% of Federal Poverty Level through their Charitable Mail-Order Pharmacy in Iowa.
Affordable, comprehensive primary health care especially for those with limited resources. Includes general physical exams and immunizations.
Services are provided regardless of ability to pay through a sliding fee discount program. Fees are calculated based on household size and documented annual income. All patients are eligible to apply for the sliding fee discount, even those with insurance.
Dental Clinic offers preventative dental services including: X-rays, exams, cleanings, fillings and extractions.
Pharmacy services offered to patients. Those eligible for the sliding fee program receive their medications at 30 to 50% below the retail market. Kohl's, Walgreens, Genoa, and Walmart fill all medications. Mobile Medical Clinic services, in which a van visits different locations to see patients.
HIV/STD testing provides confidential HIV/AIDS testing and counseling.
Transportation program provides a limited number of cab vouchers.
Mental health services are provided in-house through a partnership with Lutheran Family Services of Nebraska, as well as being referred out to collaborating behavioral health agencies.
Prenatal care for women.
Radiology has certified x-ray technicians to provide limited x-ray services.
Medication assistance programs help uninsured and underinsured patients apply to various pharmaceutical companies. Staff complete applications for patients to obtain their medication at an affordable cost.
Translation services offered to non-English speaking patients. Languages include Spanish, Vietnamese, Arabic, Kurdish, Burmese, Karen, and Thai.